Research Without Fear: An Introduction

In this lesson, you’ll learn about what research actually is, and why you don’t need a research department or a PhD to start doing it. 

We’ll cover how the healthcare ecosystem works and where patient organisations fit within it, what separates an individual anecdote from real evidence (and why that distinction matters to clinicians, payors and pharma alike), and what patient experience data (PED) is and how it complements clinical trial and real-world data. You’ll also get a simple five-step framework for planning your own project, from defining the problem to sharing the results, along with guidance on matching your method to your audience and the basic ethics, consent and GDPR considerations to keep in mind. 

By the end, you’ll have the confidence and a practical toolkit to start generating your own evidence, however small the first step.