Introduction to Patient Advocacy – Advocacy in Action

In this lesson, you’ll learn about what patient advocacy really involves, and how to do it effectively and strategically. 

We’ll unpack what “the patient” actually means, from individual patients and carers to patient advocates, organisation representatives and patient experts; and look at the three levels advocacy operates on: patient support, research, and health policy. You’ll explore common pitfalls (like advocating at the wrong level or attending meetings without real impact), map out the key stakeholders you’ll engage with, and see real examples of evidence-based advocacy in PNH and other disease areas. 

By the end, you’ll understand how to focus your efforts where they’ll have the most impact, and you’ll know which networks, resources and PNH Global Alliance programmes are there to support you along the way.